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In 2015, I was diagnosed with vascular dementia. I was scared. I felt anxious and was questioning my future.

However, this stopped once I got help from my doctor. The wait to see him wasn’t too long, and the collaboration between the neurologist and the psychiatrists was great. They each provided my family and I with excellent advice. I felt a lot of empathy and a willingness to help me.

After my diagnosis, my wife also felt some anxiety. Nevertheless, she’s been supportive and has been there with me. She also sought information on dementia. My son has also been supportive.

I had to abandon a part of my previous life. I had less energy and some difficulties in following others and taking part in the activities I’d enjoyed in the past. I’ve experienced a lot of changes in my everyday life.

It’s important to tell other people about your condition and discuss it openly. It took me some time before I could announce my diagnosis to others. I was scared they would look at me differently. I think you also need to explain it to the people around you — even to young children, if they are old enough to understand. It’s also important to register with some workshops.

I think we talk about dementia more, now. There is more information, more conferences, documents and more awareness linked to the caregivers’ reality too. I think it’s important that we keep talking about it.


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