Elaine

My mother-in-law, Marjorie Hillier, was diagnosed with dementia in 1997 at the age of 69. She was a highly intelligent, gentle, loving lady and a devoted wife, mother and grandmother. Her life revolved around her faith and her family.

Diagnosis

We had noticed signs that something was wrong but, nevertheless, her diagnosis was devastating to us all. We knew the journey ahead would be difficult, both for her and us. Knowing she would eventually not know who we were was hard to comprehend. We were also worried about my father-in-law and how his life would change significantly and how he would cope with the situation.

Marjorie and her husband lived in a rural community. He decided they would move to St. John’s where they would be closer to their children and more specialized medical care. Moving from familiar surroundings and friends presented its own challenges to them both. Her family kept her involved in social and family activities for as long as possible, until it became necessary to place her in long term care.

The health-care system

We had a good experience with the health-care professionals involved in Marjorie’s journey. They were kind and knowledgeable. Fortunately, two of her children are healthcare professionals. Their knowledge and understanding of the medical issues we encountered were a great support to us all.

Facing stigma

Our family didn’t experience any stigma with the diagnosis. Friends and extended family were saddened to hear the news and offered prayers and support.

I feel the views about dementia in general have changed significantly. Due to an aging population, dementia is increasing. Education and community supports for the person with dementia and their caregiver(s) are more readily available. There is less fear of the disease and more acceptance of a difficult diagnosis.

Our children were young at the time of their Nan’s diagnosis. We lived three and a half hours from St. John’s and did not see her as often as other family members.

Consequently, the changes we saw in her were more prominent to us. Our children found it difficult when she no longer knew who they were. Hugs became important because they knew when they hugged their Nan, she knew they loved her and were someone special.

Throughout her dementia journey, Marjorie remained the gentle person she had always been.  She passed away in 2000. We miss her so very much each and every day.