Marilyn

After receiving a prescription from my doctor, I went to get it filled and for some reason, the pharmacist was speaking to me in loud slow words and explaining how to use a pill pack. I left the pharmacy quickly because people were looking at me funny, as if I “had something.”  When I got home and had a chance to settle, I opened the pack. It read: “Diagnosis: ALZHEIMER’S.” WHAT???!!! I immediately began to think all kinds of things. Was I going to be locked up? I need to get my will in order, fast!

The neurologist had said “try these” and wrote a prescription. He filled in a form that I could use so that I wouldn’t have to pay the full price of the prescription.  That’s it.

I started taking the pills. They made me vomit but my doctor didn’t seem too concerned. Within a few months, I was eating baby food, so I could keep my food down. It got so bad that I went to a walk-in clinic and was given a prescription for stomach pills – and I never returned to my doctor.

Isolation is a huge issue for anyone living with dementia. People who I thought were my friends suddenly made excuses for not wanting to see me, or they wouldn’t bother showing up. The isolation grew worse when I could no longer drive.

Corinne, my daughter, was and is my greatest source of support, but she lives very far away, as do my stepson and stepdaughter.  They were concerned when I was diagnosed.

Stigma can happen anytime and anywhere. For example, once when I was checking in for a flight, the man at the counter was telling me about my times, gates and boarding pass. But then he looked at a piece of paper and asked who is the person who needs assistance? When I told him it was me, all he had to do was point me to the right gate. Instead, he completely disconnected eye contact and only spoke to my friend who had given me a ride to the airport. I was no longer a person. People patronize and assume I’m incompetent.

I believe the public’s attitude is being changed one person at a time. Other stigmas have gone by the wayside over time. Alzheimer Societies across the country are to be commended for their awareness campaigns.  They are working.